Nipissing University is delivering a national support service for people living with rare or young onset dementia.
The university says Rare Dementia Support (RDS) Canada provides a virtual space for those affected, offering access to information, tailored individual and group support and guidance, and connection with others affected by similar conditions.
The team, which is led by Dr. Mary Pat Sullivan, Professor of Social Work and Social Gerontology, includes dementia practitioner specialists, researchers, educators and individuals with lived experience through an Advisory Circle.
“There is a significant gap in supports available for people living with a rarer or young onset dementia,” says Sullivan. “RDS Canada will help narrow this gap for people living in Canada by connecting them with the information about their disease, resources and practitioners to support their wellbeing.”
The service, delivered via Nipissing’s campus, is offered in partnership with Rare Dementia Support (RDS), University College London (UCL), in the United Kingdom.
For more information about RDS Canada, visit https://raredementiasupport.ca/